Aims of EUROMACS
The aims of Euromacs are to:
- Promote scientific research with respect to the care of patients with end stage heart failure, and who have received mechanical circulatory support (MCS) by means of a ventricle assist device (VAD) or a total artificial heart (TAH) for a longer period of time.
- Maintain a registry in which the clinical data of the implantation and the long term follow up of patients who have received mechanical circulatory support is collected
- Offer to its members a software tool with which they can administrate and analyse the clinical data of their own patients on a daily basis
- Facilitate scientific studies by making the Euromacs Registry data anonymously available to research groups
- Stimulate cooperation with clinical institutions, with peer associations, and e.g. third parties to which anonymous patient data are transmitted for scientific purposes.
- Publish annual reports -comparable to those of other registries- giving an overview of Euromacs activities, the stock of data, and an insight in the progress of scientific studies which make use of the Registry