Aims of EUROMACS

The aims of Euromacs are to:

• Promote scientific research with respect to the care of patients with end stage heart failure, and who have received mechanical circulatory support (MCS) by means of a ventricle assist device (VAD) or a total artificial heart (TAH) for a longer period of time.
• Maintain a registry in which the clinical data of the implantation and the long term follow up of patients who have received mechanical circulatory support is collected
• Offer to its members a software tool with which they can administrate and analyse the clinical data of their own patients on a daily basis
• Facilitate scientific studies by making the Euromacs Registry data anonymously available to research groups
• Stimulate cooperation with clinical institutions, with peer associations, and e.g. third parties to which anonymous patient data are transmitted for scientific purposes.
• Publish annual reports -comparable to those of other registries- giving an overview of Euromac’s activities, the stock of data, and an insight in the progress of scientific studies which make use of the Registry