Aims of EUROMACS
The aims of Euromacs are to:
- Promote scientific research with respect to the care of patients with end stage heart failure, and who have received mechanical circulatory support (MCS) by means of a ventricle assist device (VAD) or a total artificial heart (TAH) for a longer period of time.
- Maintain a registry in which the clinical data of the implantation and the long term follow up of patients who have received mechanical circulatory support is collected
- Offer to its members a software tool with which they can administrate and analyse the clinical data of their own patients on a daily basis
- Facilitate scientific studies by making the Euromacs Registry data anonymously available to research groups
- Stimulate cooperation with clinical institutions, with peer associations, and e.g. third parties to which anonymous patient data are transmitted for scientific purposes.
- Publish annual reports –comparable to those of other registries- giving an overview of Euromacs activities, the stock of data, and an insight in the progress of scientific studies which make use of the Registry
The official formulation of the aims of Euromacs can be found in the statute (internal link), elsewhere on this website.