§ 1 Name, registered seat and fiscal year
The association uses the name "Euromacs - European Registry for Patients with Mechanical Circulatory Support e.V" and is registered in the register of associations.
The registered seat of the association is in Berlin.
The official language of the association is English
1.4 The fiscal year is the calendar year.
§ 2 Object, tasks and non-profit character of the association
The association exclusively and directly pursues non-profit purposes within the meaning of the section "taxprivileged purposes"of the fiscal code.
The exclusive object of the association ist the promotion of science and research in the area of care of patients, who have received systems of mechanical circulatory. For this purpose the association will record data of patients who have received systems for mechanical circulatory support in order to conduct - also with help of auxiliary persons (Sec. 57 Para. 1 sentence 2 Fiscal Code) - medical studies with these data which serve to improve the care of patients with these systems.
The object of the statute shall be directly realised in particular through the following measures:
Settingup of an electronic register in which pseudonymised patient data are stored,
Conclusion of cooperation agreements with the responsible bodies of clinical institutions which regulate the pseudonymised data transmission to the register,
Conclusion of cooperation agreements with third parties to which anonymised patient data are transmitted for scientific purposes,
Publication of an annual report in which information is provided about the consolidated data stocks and the results of the conducted research projects are presented on an anonymous basis.